{"id":2466,"date":"2025-12-21T03:00:00","date_gmt":"2025-12-21T04:00:00","guid":{"rendered":"https:\/\/packnrun.org\/?p=2466"},"modified":"2025-12-23T11:56:17","modified_gmt":"2025-12-23T11:56:17","slug":"my-sons-horror-condition-is-so-rare-it-doesnt-have-a-name","status":"publish","type":"post","link":"https:\/\/packnrun.org\/index.php\/2025\/12\/21\/my-sons-horror-condition-is-so-rare-it-doesnt-have-a-name\/","title":{"rendered":"&#039;My son&#039;s horror condition is so rare it doesn&#039;t have a name&#039;"},"content":{"rendered":"<p>As we near Christmas, and our brilliant Mirror charity appeal for Lifelites continues, we meet 13-year-old Mikey. His medical needs are so complex that he has to have someone trained in resuscitation with him 24 hours a day, but he&#8217;s able to play and unwind through virtual reality<\/p>\n","protected":false},"excerpt":{"rendered":"<p>As we near Christmas, and our brilliant Mirror charity appeal for Lifelites continues, we meet 13-year-old Mikey. His medical needs are so complex that he has to have someone trained in resuscitation with him 24 hours a day, but he&#8217;s&#8230; <\/p>\n","protected":false},"author":1,"featured_media":2468,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":[],"categories":[14],"tags":[],"_links":{"self":[{"href":"https:\/\/packnrun.org\/index.php\/wp-json\/wp\/v2\/posts\/2466"}],"collection":[{"href":"https:\/\/packnrun.org\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/packnrun.org\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/packnrun.org\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/packnrun.org\/index.php\/wp-json\/wp\/v2\/comments?post=2466"}],"version-history":[{"count":1,"href":"https:\/\/packnrun.org\/index.php\/wp-json\/wp\/v2\/posts\/2466\/revisions"}],"predecessor-version":[{"id":2467,"href":"https:\/\/packnrun.org\/index.php\/wp-json\/wp\/v2\/posts\/2466\/revisions\/2467"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/packnrun.org\/index.php\/wp-json\/wp\/v2\/media\/2468"}],"wp:attachment":[{"href":"https:\/\/packnrun.org\/index.php\/wp-json\/wp\/v2\/media?parent=2466"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/packnrun.org\/index.php\/wp-json\/wp\/v2\/categories?post=2466"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/packnrun.org\/index.php\/wp-json\/wp\/v2\/tags?post=2466"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}